The Specialist Huntington’s Disease Advisor for North Wales covering Conwy, Denbighshire, Anglesey, Gwynedd, Flintshire and Wrexham is Delia Roberts. The key role of the SHDA is to:
They support anyone who needs their help at any stage of the Huntington’s journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.
Our Specialist Huntington’s Disease Advisers can help by:
- providing a listening ear, advice and emotional support
- delivering our confidential telephone helpline service
- coordinating support with medical, health and social care professionals
- making referrals into specialist Huntington’s disease clinics
- advocating for the person with Huntington’s disease to get the best support
- organising and attending local support networks and carers’ group meetings
- providing information resources on symptoms and how to manage them
- connecting younger family members with our Youth Engagement Service – HDYES
- giving support for sensitive end-of-life care
- educating medical, health and social care professionals
Message from Delia:
I have a Nursing and Midwifery background and have spent the past 20 years as a Locality Matron, looking after and supporting individuals and their families in the community many with degenerative neurological conditions. Previous to that I was a District Nurse with a lot of experience caring for patients in their own environment and providing end of life care. I am hoping to be able to use this experience to support the families and professionals in my area.
Mae gennyf gefndir ym maes Nyrsio a Bydwreigiaeth ac wedi treulio’r 20 mlynedd diwethaf fel Metron Lleoliad, yn gofalu ar ôl unigolion a’u teuluoedd a’u cefnogi yn y gymuned, llawer ohonynt â chyflyrau niwrolegol dirywiol. Cyn hynny, roeddwn yn Nyrs Ardal gyda llawer o brofiad yn gofalu am gleifion yn eu hamgylchedd eu hunain ac yn darparu gofal diwedd oes. Rwy’n gobeithio defnyddio’r profiad hwn i gefnogi’r teuluoedd a’r gweithwyr proffesiynol yn fy ardal.
Delia Roberts
North Wales (Anglesey, Conwy, Denbighshire, Flintshire, Wrexham, Gwynedd)